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Friday, 6 June 2025

A hidden disability - with a twist!


When I was a junior reporter on a local newspaper (years ago - it was my first job), the sports correspondent said: "You don't look like someone who has epilepsy."

What???

I never got to the bottom of how he thought people with epilepsy should look. Perhaps with people in front of them ringing bells and shouting UNCLEAN?

Of course I asked and stared at him but he just blushed deeper and deeper until our news editor sort of pulled me off him and changed the subject. As I say, that was years ago - getting on for 40 - but public attitudes to epilepsy haven't changed much.

There is no physical 'look' attached to people with epilepsy. It is an 'invisible' disability and as we all know 'not all disabilities are visible'. You've all seen the signs telling you that (in buses/trains/toilets etc).

However unlike other problems, it does rear it its ugly head very visibly if someone with epilepsy has a seizure. Not always flaking and shaking on the floor, as many people tend to expect, but also stopping mid-sentence and daydreaming. Or shouting a word. Or walking around looking for something that doesn't exist. Or twisting around in their chair as if they're dancing.

Epilepsy can be one hell of a visible invisible problem!








A hidden disability - with a twist!

When I was a junior reporter on a local newspaper (years ago - it was my first job), the sports correspondent said: "You don't look...