This story happened a while ago but it doesn't date. Date being the operative word!
I hadn't long split from my husband and was seeing the new man in my life. It was about time, I figured, that I told him about the form of epilepsy I had - just in case. Better for him to be forewarned.
But what if he was shocked? What if he had the usual old prejudice? I hadn't known him that long and I wasn't sure how he'd react.
Anyway, why was I even thinking about it. It was hardly like I was going to have a seizure....was it?
All this was going through my head as I walked to the pub where he was waiting with a glass of wine for me. It was a beautiful summer's afternoon and we took our drinks out into the garden to sit near the river.
Nick started to say something - and I haven't a clue what because, apparently, I suddenly jumped up, started fiddling with my top, moved onto my trousers and then demanded to go home for coffee without taking so much as a sip of the wine. Nick, understandably, was a little surprised and persuaded me to settle for a much nearer cafe. I grabbed his hand and marched him there at some pace - my conscious mind knowing nothing of what I was doing!
But by the time my cappucino arrived I was 'back in the room' - realising that 'it' must have happened because I was in a different place, looking at a different drink. I know how odd that must sound to anybody who doesn't have epilepsy: 'how could she still walk and talk but actually be "out of it"!'
Honestly, it sounds odd to me when I hear the story. It's like it happened to someone else which is why, maybe, I've learnt to laugh at it!
And if I hadn't decided to tell Nick there and then, he wouldn't have realised the episode was epilepsy - or even suspect behaviour. He still maintains that he thought the clothes fiddling bit was me being attacked by a wasp/bee and the coffee demand was simply me deciding I didn't want alcohol.
Looking back, I think the seizure might have emerged out of the desperate hope that I wouldn't have one. Oh well! It taught me to lighten up and relax.
Epilepsy is not one 'thing' - and it's often not THE thing you're thinking of when you hear the word 'epilepsy'. Epi-Log catalogues the good, the bad and the rarely-reported stories about a condition that affects 600,000 people in the UK - and rubs off on many more: their friends and family
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Hi Julie,
ReplyDeleteThank you for the friend request over on Bloggers. Your blog is working as it has already started educating me! Great work! Are you going to do a follow-up on how Nick is handling the news?
- Casey
Thank you for your words of encouragement, Casey! Means a lot - and yes, will be doing a follow-up.
Deletethank's for visiting my bloggers, now i follow your GFC
ReplyDeleteHi Julie! That is a story you would never forget, in years to come you'll probably say; "remember that time we hadn't known each other for very long"...........
ReplyDeleteNick seems like a great guy!
Keep up the great work your doing with your blog :-)
WOW! Girlfriend, this blog is so fantastic! I had no idea that there were different forms of epilepsy. Thank you so much for educating us in a very real way. I look forward to your future posts.
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