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Showing posts with label prejudice. Show all posts
Showing posts with label prejudice. Show all posts

Tuesday, 7 August 2012

I have to laugh at my ep sometimes....

This story happened a while ago but it doesn't date. Date being the operative word! 
I hadn't long split from my husband and was seeing the new man in my life. It was about time, I figured, that I told him about the form of epilepsy I had - just in case. Better for him to be forewarned.
But what if he was shocked? What if he had the usual old prejudice? I hadn't known him that long and I wasn't sure how he'd react.
Anyway, why was I even thinking about it. It was hardly like I was going to have a seizure....was it?
All this was going through my head as I walked to the pub where he was waiting with a glass of wine for me. It was a beautiful summer's afternoon and we took our drinks out into the garden to sit near the river.
Nick started to say something - and I haven't a clue what because, apparently, I suddenly jumped up, started fiddling with my top, moved onto my trousers and then demanded to go home for coffee without taking so much as a sip of the wine. Nick, understandably, was a little surprised and persuaded me to settle for a much nearer cafe. I grabbed his hand and marched him there at some pace - my conscious mind knowing nothing of what I was doing!
But by the time my cappucino arrived I was 'back in the room' - realising that 'it' must have happened because I was in a different place, looking at a different drink. I know how odd that must sound to anybody who doesn't have epilepsy: 'how could she still walk and talk but actually be "out of it"!'
Honestly, it sounds odd to me when I hear the story. It's like it happened to someone else which is why, maybe, I've learnt to laugh at it!
And if I hadn't decided to tell Nick there and then, he wouldn't have realised the episode was epilepsy - or even suspect behaviour. He still maintains that he thought the clothes fiddling bit was me being attacked by a wasp/bee and the coffee demand was simply me deciding I didn't want alcohol.
Looking back, I think the seizure might have emerged out of the desperate hope that I wouldn't have one. Oh well! It taught me to lighten up and relax.

Monday, 9 July 2012

There's something you should know...I don't drive

We live in a completely car-centric society and I don't know what's more difficult: telling people I have a form of epilepsy - or instead, breaking the alien, freakish, horribly unusual news to them that I don't drive...
Met a couple of women at the weekend and arranged to see them this week - and then the horrible happened. (Bear in mind that ep is a hidden condition and they have absolutely no idea that I have it.)
Woman Number 1 gives me driving instructions to her house.
Me: "I don't drive. Are you near a train station or on a bus route?"
WN1: "You don't drive?"
Me: "No, but I'll get to you by public transport."
WN1: "How?"
Me:" I don't exactly know yet but if you're not near a train station I can look up bus routes."
Woman Number 1 looked at Woman Number 2 with a 'that's odd, what-have-we-got-here expression'.
WN2 said: "How did you get here?"
Me: "Walked."
WNs1&2: "Walked!"
I was beginning to find this amusing but also a bit awkward.
Me: "Yes, walked."
They thought about that for a minute...legs as a form of transport. Then -
WN2: "If you don't drive, how do you do your food shopping. I couldn't carry mine."
Me: "Online. It gets delivered."
WN2: "I prefer to do it myself - you can never be sure what you get."
Me: "Yes, I'd prefer to do it myself too but I don't drive so I have to work around it."
Now they have me cornered. Either I let them believe that I choose not to drive because I'm lazy and haven't bothered to learn or I'm banned because of an offence. I could make up a story about being kind to the environment but I'm not going to lie to help them out with their prejudice. So I tell them that the DVLA wouldn't give me a licence because I have a condition where I have a type of seizure - sometimes.
This somehow satisfies the two women. WN1 tells me the numbers of buses that go near her home and WN2 offers, not only a lift home, but also invites me to join her on a her next weekly shop!
I think the car thing is quite funny. People will spend hours bemoaning their weight (too much); diet (when they're going to start one); the gym (when they're going to go now they've bought membership). Then they jump in their car to drive a few yards down the road to buy a bunch of something they shouldn't be eating.
People ask me if my medication helps keep my weight off. Now I think about it, I don't know any fat people with epilepsy. That maybe a gross (pun intended) generalisation. It's not because we pop pills though. It's because, to us, walking isn't a huge exercise programme: it's a way of life! And I don't think we deserve medals for it. We were already born with our reward - feet - it's just that car-drivers rarely use theirs.


A hidden disability - with a twist!

When I was a junior reporter on a local newspaper (years ago - it was my first job), the sports correspondent said: "You don't look...