This story happened a while ago but it doesn't date. Date being the operative word!
I hadn't long split from my husband and was seeing the new man in my life. It was about time, I figured, that I told him about the form of epilepsy I had - just in case. Better for him to be forewarned.
But what if he was shocked? What if he had the usual old prejudice? I hadn't known him that long and I wasn't sure how he'd react.
Anyway, why was I even thinking about it. It was hardly like I was going to have a seizure....was it?
All this was going through my head as I walked to the pub where he was waiting with a glass of wine for me. It was a beautiful summer's afternoon and we took our drinks out into the garden to sit near the river.
Nick started to say something - and I haven't a clue what because, apparently, I suddenly jumped up, started fiddling with my top, moved onto my trousers and then demanded to go home for coffee without taking so much as a sip of the wine. Nick, understandably, was a little surprised and persuaded me to settle for a much nearer cafe. I grabbed his hand and marched him there at some pace - my conscious mind knowing nothing of what I was doing!
But by the time my cappucino arrived I was 'back in the room' - realising that 'it' must have happened because I was in a different place, looking at a different drink. I know how odd that must sound to anybody who doesn't have epilepsy: 'how could she still walk and talk but actually be "out of it"!'
Honestly, it sounds odd to me when I hear the story. It's like it happened to someone else which is why, maybe, I've learnt to laugh at it!
And if I hadn't decided to tell Nick there and then, he wouldn't have realised the episode was epilepsy - or even suspect behaviour. He still maintains that he thought the clothes fiddling bit was me being attacked by a wasp/bee and the coffee demand was simply me deciding I didn't want alcohol.
Looking back, I think the seizure might have emerged out of the desperate hope that I wouldn't have one. Oh well! It taught me to lighten up and relax.
Epi-log chronicles the real stories behind a condition that is badly misunderstood. Epilepsy dates back to 4000 BC. The social stigma surrounding the condition hasn't changed much since then making the problem so much worse for the 600,000 people in the UK suffering with it.
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Showing posts with label prejudice. Show all posts
Showing posts with label prejudice. Show all posts
Tuesday, 7 August 2012
Monday, 9 July 2012
There's something you should know...I don't drive
We live in a completely car-centric society and I don't know what's more difficult: telling people I have a form of epilepsy - or instead, breaking the alien, freakish, horribly unusual news to them that I don't drive...
Met a couple of women at the weekend and arranged to see them this week - and then the horrible happened. (Bear in mind that ep is a hidden condition and they have absolutely no idea that I have it.)
Woman Number 1 gives me driving instructions to her house.
Me: "I don't drive. Are you near a train station or on a bus route?"
WN1: "You don't drive?"
Me: "No, but I'll get to you by public transport."
WN1: "How?"
Me:" I don't exactly knowyet but if you're not near a train station I can look up bus routes."
Woman Number 1 looked at Woman Number 2 with a 'that's odd, what-have-we-got-here expression'.
WN2 said: "How did you get here?"
Me: "Walked."
WNs1&2: "Walked!"
I was beginning to find thisamusing but also a bit awkward.
Me: "Yes, walked."
They thought about that for a minute... legs as a form of transport. Then -
WN2: "If you don't drive, how do you do your food shopping. I couldn't carry mine."
Me: "Online. It gets delivered."
WN2: "I prefer to do it myself - you can never be sure what you get."
Me: "Yes, I'd prefer to do it myselftoo but I don't drive so I have to work around it."
Now they have me cornered. Either I let them believe that I choose not to drive because I'm lazy and haven't bothered to learn or I'm banned because of anoffence . I could make up a story about being kind to the environment but I'm not going to lie to help them out with their prejudice. So I tell them that the DVLA wouldn't give me a licence because I have a condition where I have a type of seizure - sometimes.
This somehow satisfies the two women. WN1 tells me the numbers of buses that go near her home and WN2 offers, not only a lift home, but also invites me to join her on a her next weekly shop!
I think the car thing is quite funny. People will spend hours bemoaning their weight (too much); diet (when they're going to start one); the gym (when they're going to go now they've bought membership). Then they jump in their car to drive a few yards down the road to buy a bunch of something they shouldn't be eating.
People ask me if my medication helps keep my weight off. Now I think about it, I don't know any fat people with epilepsy. That maybe a gross (pun intended) generalisation. It's not because we pop pills though. It's because, to us, walking isn't a huge exercise programme: it's a way of life! And I don't think we deserve medals for it. We were already born with our reward - feet - it's just that car-drivers rarely usetheirs .
Met a couple of women at the weekend and arranged to see them this week - and then the horrible happened. (Bear in mind that ep is a hidden condition and they have absolutely no idea that I have it.)
Woman Number 1 gives me driving instructions to her house.
Me: "I don't drive. Are you near a train station or on a bus route?"
WN1: "You don't drive?"
Me: "No, but I'll get to you by public transport."
WN1: "How?"
Me:" I don't exactly know
Woman Number 1 looked at Woman Number 2 with a 'that's odd, what-have-we-got-here expression'.
WN2 said: "How did you get here?"
Me: "Walked."
WNs1&2: "Walked!"
I was beginning to find this
Me: "Yes, walked."
They thought about that for a minute
WN2: "If you don't drive, how do you do your food shopping. I couldn't carry mine."
Me: "Online. It gets delivered."
WN2: "I prefer to do it myself - you can never be sure what you get."
Me: "Yes, I'd prefer to do it myself
Now they have me cornered. Either I let them believe that I choose not to drive because I'm lazy and haven't bothered to learn or I'm banned because of an
This somehow satisfies the two women. WN1 tells me the numbers of buses that go near her home and WN2 offers, not only a lift home, but also invites me to join her on a her next weekly shop!
I think the car thing is quite funny. People will spend hours bemoaning their weight (too much); diet (when they're going to start one); the gym (when they're going to go now they've bought membership). Then they jump in their car to drive a few yards down the road to buy a bunch of something they shouldn't be eating.
People ask me if my medication helps keep my weight off. Now I think about it, I don't know any fat people with epilepsy. That maybe a gross (pun intended) generalisation. It's not because we pop pills though. It's because, to us, walking isn't a huge exercise programme: it's a way of life! And I don't think we deserve medals for it. We were already born with our reward - feet - it's just that car-drivers rarely use
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